It is estimated that Cystic Fibrosis (CF) affects around 100,000 people around the world. One in every 3,600 children born in Canada has Cystic Fibrosis making it the most common fatal genetic disease affecting Canadian children and young adults. There is currently no cure.
A key therapy in the treatment of CF patients is Positive Expiratory Pressure therapy or PEP. This is an airway clearance technique that can greatly extend the patient lifespan. Children like Bella do this physiotherapy twice a day, for around 30 minutes each time. It is necessary and very repetitive.
It is boring. Really really boring.
The Bella Project is about improving two important aspects of PEP therapy: being able to record the results (the breaths) in real time to track the results remotely, as well as providing a fun way to do the therapy. We are all about making PEP therapy more enjoyable and allowing kids the chance to do it on their own, while still assuring parents that it is being done properly.
The goal is to create a series of game apps for CF children aged 6 to 12 that would help them complete their daily physiotherapy. In 2014, we hosted a successful Game Jam in Vancouver to begin their development. From flying cloud-avoiding dragons to bandits stealing bricks from a moving train, these games are on the way to entertaining CF kids all over Canada - maybe even the world!
The future of CF is a little brighter
With the help of our company Spot Solutions, many volunteers, local gamers, artists, developers, health care personnel, family and friends, we have some innovative products that we hope will make the CF child’s daily routine a little more fun.